Tag Archives: ICU

A Sick Little Girl and the God Who Heals

Leave a reply

I will never forget the five nights we spent in the ICU with our then five-year-old daughter, Macey. She was so very sick when we took her to the hospital. She had been losing weight and just wasn’t herself. Then she started throwing up. It lasted a few days, and she was so weak. We knew something was really wrong. All we knew was we needed the God who heals.

Scary Days

As soon as we got to the hospital and got her into a room, a nurse turned to me and said, “It’s ketoacidosis. I can smell it on her breath.” That meant nothing to us in the moment, but we would come to understand all of it later. Over the next few hours, they arranged transport by ambulance to the Childrens’ Hospital of Philadelphia where she would receive the care she needed as a type 1 Diabetic. She was admitted to the ICU. There were so many doctors and nurses coming and going. They spoke of brain damage and the severity of her situation. It was completely overwhelming. Those were some dark days filled with fear, anxiety, and what-ifs.

God got us through those days, and Macey is doing well today. She wears both an insulin pump and a glucose monitor. But I have a special place in my heart for Type 1 Warriors.

(Macey is the one next to me, on the right.)

The Death of a Little Girl

When I read the story of a little girl being sick and then dying, it tugs on my mama’s heartstrings. And that’s the story we read in Luke 8.

The girl’s father, a man named Jairus, comes to Jesus and begs him to save his little girl. The little girl was twelve, and she was dying. He knew it, his wife knew it, and probably the girl herself knew it.

Jesus agrees and begins to make his way to Jairus’s home. It takes him a little bit because the woman with the issue of blood stops him, and He heals her. A messenger comes and finds Jairus and tells him, “Your daughter is dead. Don’t bother the teacher anymore.”

Just Believe

Jesus overhears the man and turns to Jairus and says these words, “Don’t be afraid. Only believe, and she will be saved.” Then they continue on to Jairus’s home. When they get there, only Jairus and his wife and Peter, James, and John are allowed inside with Jesus. Jesus takes the girl by her hand and says, “Child, get up.” The very next order is something that captures my husband’s and my attention. Jesus says, “Get her something to eat.”

Now allow me to hypothesize here for a moment. This is pure conjecture. But Matt and I often wonder if the girl in this story had diabetes. Obviously, they wouldn’t have even known back then that’s what it was. She would have just gotten thinner and thinner and sicker and sicker until she eventually slipped into a coma and then died. So when Jesus comes to her and heals her and then tells them to give her something to eat, it strikes at something inside me. The cure to helping someone whose sugars are too low is to give them something to eat.

Jesus Heals

So did she have diabetes? Maybe. Maybe not. But it certainly has made me think about what it must have been like for Jesus to heal people when he was here on earth. He knew every single disease and ailment He was healing, and yet, so many of those sicknesses weren’t even labeled yet. Can you imagine Jesus healing someone with diabetes? He heals them and can’t even tell them what it is. What would He say? “It’s a disease that they’ll discover in about fifteen hundred years, and they won’t have a cure for it for another five hundred years.”

God is our healer. His name, Jehovah Raphah, means, “the Lord Who heals.” We see this in Exodus 15:26.

He said, “If you will listen carefully to the voice of the Lord your God and do what is right in his sight, obeying his commands and keeping all his decrees, then I will not make you suffer any of the diseases I sent on the Egyptians; for I am the Lord who heals you.”

Exodus 15:26 NLT

Don’t Stop Asking

It brings me such comfort to know this name of God, the God who heals. I don’t know what you need healed today, but I know the God who does the healing. It may be a physical ailment, or it may be spiritual or mental. I don’t know what it is, but God does. And He’s a God who heals. It’s in the very nature of who He is.

Whatever you need healing from today, take it to the God who heals, believing He will heal. Don’t give up on asking and believing.

And so I tell you, keep on asking, and you will receive what you ask for. Keep on seeking, and you will find. Keep on knocking, and the door will be opened to you.  For everyone who asks, receives. Everyone who seeks, finds. And to everyone who knocks, the door will be opened. You fathers—if your children ask for a fish, do you give them a snake instead? Or if they ask for an egg, do you give them a scorpion? Of course not! So if you sinful people know how to give good gifts to your children, how much more will your heavenly Father give the Holy Spirit to those who ask him.”

Luke 11:9-13 NLT

More Encouragement

For more encouragement, check out my post, When Trials Knock Your Feet Out from Under You. A book I’m working through right now is Untangle Your Emotions: Naming What You Feel and Knowing What to Do About It.

Our Week in the ICU and God’s Grace for Every Moment

7 Replies

Needing God’s Grace and Strength

Last Sunday, I stood before our church family and gave one of the points of Matt’s message for the day. The point was this… God allows weakness into our lives so that we fully depend on God’s grace and strength. I spoke about how there is never going to be a day that we don’t need God. I had no idea that those words were about to play out in my life in a very real way. 

On Monday afternoon, we took our five-year old, Macey, to the emergency room. She had been throwing up for twenty-four hours and grown progressively weaker and dehydrated. She got to the point where she could no longer walk and had to be carried. 

Transfer to Chop

By the time we got to the emergency room, she was pretty much comatose. We could barely get her to respond, her heart rate was really high, and her eyes were sunken in. They immediately told us they suspected type 1 diabetes. Soon, they drew her blood and told us that her sugars were 1795—something they had never seen before. They immediately contacted Children’s Hospital of Pennsylvania to come pick her up and transfer her.

Macey was completely comatose for the transport to CHOP. There was a team waiting for her in the ICU when we got there and they immediately got to work. They got three IVs going, and she was put on fluids and insulin. 

The Next Forty-Eight Hours

Over the course of the next forty-eight hours, she had blood work every two hours, finger pricks, shots, and more. They couldn’t get her blood to draw easily, so every time was complete torture—her screaming and crying for it to stop for twenty minutes every time. 

Every night when I laid down around midnight to get a little rest in between blood work, after Matt had gone home to be with our other kids and I was alone, the tears would start. “I can’t do this anymore. I’m not strong enough. I can’t take her pain. I hate this…”

Each morning, I would wake up, pray for a few minutes, read some of my Bible on my phone and start again. God would carry me through the day once again. It was literally an hour by hour thing of depending on God to get me through.

On Thursday, I got to hold her for the first time. Neither one of us said anything. She was just grateful to be held, and I was grateful to hold my little girl in my arms.

We got to leave the ICU on Thursday night and move to the endocrinology floor where Matt and I continued our training to be able to care for her at home.

We finished our training late Friday afternoon and finally got to begin the discharge process. Then, around dinner time, we got to take our precious girl home.

Our Lives Forever Changed

Our lives have forever changed, and so has Macey’s. We had absolutely no idea what we were dealing with when they diagnosed her. Wrongly, we assumed that we would have to limit her sugar, help her eat healthy and exercise, and give insulin when needed. 

We couldn’t have been more wrong. What we didn’t know was that Type 1 Diabetes is an auto-immune disease for which there is no cure. It’s not maintained by diet and exercise.

Simply put, her pancreas doesn’t work the way it’s supposed to. Because of that, she can’t put anything into her mouth ever again without first taking insulin. That means she has to check her blood sugar with finger pricks five to eight times a day and get as many shots.

We have to figure out how what and how much she is going to eat every time she eats and figure out how much insulin to give her before she eats. That doesn’t include a nightly dose of insulin as well as checking anytime throughout the day when we suspect her sugars are low or high. 

When we sat down and told her what was happening at the hospital—that she has diabetes and we were going to have to continue the finger pricks and shots at home, she cried… and my heart broke. To have to continue this every day for the rest of her life is staggering. To be the one to do it to her is absolutely crushing.  

The events of last week have been the hardest thing Matt and I have ever dealt with, and it’s not over. It’s just beginning. 

Grace for Today

When I opened my eyes on Saturday morning after a short, interrupted sleep, I thought of the words I spoke on Sunday…just a few days before. That there isn’t going to be a day we don’t need God. I recalled the verse I used from II Corinthians.

Paul asked for his problem to be taken away, and God said no. God didn’t take Paul’s problems away; instead He responded with this these words.

My grace is sufficient for thee: for my strength is made perfect in weakness.

II Corinthians 12:9

During those long days in the hospital, those words were all that I had to cling to. That his grace and strength would be enough to carry me through to face another hour and another day. That he will be there for my little girl just as much as he was for me. 

Our New Normal

Life looks a little different at the Manney house than it did just a week ago. We have things I never thought we’d have like a medical shelf in our closet filled with syringes, glucose strips, alcohol wipes, and more. We have a medic bag we take with us everywhere we go.

It’s amazing, though, how God’s grace carries us through. Just a few days ago, I felt hopeless, confused, and exhausted. Yet, we are adjusting to this new normal and continuing on with life just as we did before Macey’s diagnosis. That’s God’s grace.

God's grace- Macey coloring

Macey is smiling again; she’s going to be just fine. Are there challenges ahead? Yes. Is everything perfect? No. Are there hard moments and tough days? Yes. But God will get us through them by His grace…one day at a time.

God’s Grace for Today

If you’re going through something today, and you don’t know how you can make it through. I understand; I get it. The words of hope I want to give you are the same words I clung to last week. God’s grace is enough for today. Cling to that thought today and let God’s Grace and strength carry you through the next day, the next hour, the next minute even. Don’t look ahead to the future; just focus on today.

More Encouragement

Two books to give you hope when you’re going through a difficult season would be It’s Not Supposed to Be This Way by Lisa TerKeurst and my book, The Hidden Pain. Or check out these blog posts: When Problems Disrupt Our Lives and How to Prepare My Heart for a Difficult Season of Life.